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8 ‘Helpful’ Things That Don’t Really Help People With Disabilities


The Mighty StaffAn interesting conversation picked up on Reddit this week when a user posted the following question to people with disabilities: “What is something that we (presumably people without disabilities) do that we think helps, but it really doesn’t?” In just a day, more than 9,000 comments rolled in, and people living with all types of health conditions — from physical disabilities to developmental delays to invisible illnesses — offered a lot of great insight.If you’re unfamiliar with what it’s like to live with a health condition, you may not even realize when you’re not actually being that helpful. (That’s OK because that’s where we come in).

According to Redditors, here are eight common mistakes people make when they’re trying to help:

1. Helping without asking.

I love when people help me, but please always ask first, and if I say, ‘No thanks, I’ve got it,’ then go on with your day. Or better yet, strike up a conversation!”

“A friend of a friend of mine who [uses a wheelchair] told us how people constantly offer to push her to her destination, and often times go to start push (sic) her along. One person said, ‘I’m helping!’ as he started pushing her in her chair. She yelled back, ‘No, you’re kidnapping!!’He stopped.”

2. Changing the way you talk.

A wheelchair doesn’t make someone hard of hearing. Or stupid. Stop acting like it does.”“I’m hearing impaired (or hard of hearing, as the Deaf community prefers to put it). Do. Not. Yell at top volume, reeeaaaaaallllllly painfully slow. Just like it isn’t going to help a Spanish person understand the English you are speaking, it’s going to make you look real stupid to me… and everyone else we are around. It might work for you with Grandma, but I’m not your granny. Face me so I can read your lips, speak sharp and speak clear and we cool.”

Don’t bend down to my level to talk to me, I can hear you perfectly well, and it’s incredibly demeaning.”“I have an autism spectrum disorder… Just talk to me like you would anyone else, and if I need something explained to me, I will ask. It’s that simple.”

3. Saying “But you don’t look [disabled, sick, etc.]“

“‘But you don’t look sick.’ ‘Well you don’t look like a doctor, but that’s just my opinion.'”“The thing is, people without visible disabilities… often hear ‘But you don’t look sick’ as an excuse for the person saying it to not take the condition seriously or not give proper accommodations. 

In those cases it’s not a compliment, it’s an accusation. It happens way more often than you’d expect, and since it’s not just annoying but often an obstacle to actually getting the help needed to get on with your life, it gets old fast.”

4. Feeling sorry.

I don’t want to be pitied for something I can’t do anything about. It makes me feel less human/inferior.”“Pity is condescending, it ignores a person’s talents, relationships, accomplishments and joys and paints them as nothing more than a thing that suffers.”

5. Offering medical advice.

“My husband has chronic migraines. I can’t tell you the number of times someone suggests f**king Excedrin. ‘Oh really? I’ve lived with migraines for 20 years and I never thought to try over-the-counter Excedrin! Tell me more about how it helped you with a really bad headache once.'”

Someone told me cashews could cure depression. I… may not have been the most tactful in my response.”

“Believe me, unless you are a researcher who specializes in my condition, you probably don’t know more about treatments than me.

6. Calling a person “inspiring” or “brave.”

I laugh when people call me an inspiration. If they only knew. No Hallmark movies to be made about me anytime soon. lol”

“This! I’m being praised for going to university and doing normal random everyday stuff. What am I supposed to do, sit on my ass all day and wait to die?

“There’s nothing brave or strong about it. I exist. My strength and courage comes from what I do. Not what I am.

7. Shrugging off an illness you can’t see.

“I have a chronic pain condition. Please don’t tell me it’s all in my head. Everything we experience, we experience through the brain. Of course it’s in my head.”

“Just because someone looks OK to you, doesn’t mean you should treat them like they’re faking it.”

8. Avoiding eye contact or keeping your questions to yourself.

“I have some form of Tourette’s syndrome. I love questions. Questions show concern and interest, and that is (for me at least) infinitely more preferable than awkward tension.”

“I only have one eye. Look, I already know I look different. I understand that your kid is curious. That’s a good thing. Let me answer their questions. They can learn something and find out that I’m still a nice guy even though I look different. Don’t make them feel afraid to talk to people who don’t look exactly like them.”

But remember, everyone is different.

“Many of the things that some people don’t want could likewise be things others might welcome. The point is, everyone is different and has different needs and feelings about their situation in life. My advice is engage in a conversation and ask if there is anything you can do. If the answer is yes, help. If the answer is no, fine. This applies to everyone — not just those people with a clear physical impairment.” 


24.04.2015

All news:

Study visit to UK Parliament
American Ambassador visited CIL Serbia
Support to civil society organizations in drafting Local Action Plans in area of disability
Terms to Avoid When Writing About Disability
Employment of Persons with Disabilities
Parliamentary Working Group on Disability established
Training for PAs in Velika Plana
Project promotion
Round table in Smederevo
Round tables
Tomorrow Is Too Long to Wait for Inclusion
International Day of PWDs
29 Ways to Describe a Disability to Someone Who Doesn’t Understand It
CIL Serbia realised another PA training
Sectoral Round tables
Why Using a Wheelchair Is the Opposite of Giving Up
The 3 Words I Want Every Single Hospital Employee to Hear
8 ‘Helpful’ Things That Don’t Really Help People With Disabilities
When a Little Girl Felt Sorry for My Son
PA training in Vrsac
7 Microaggressions Disabled Folks Face at the Doctor’s Office—and 6 Ways to Fix Them
The 12 Pillars of Independent Living
The social model of disability
Hidden Limits
Dear Society, Why Don’t You See Different as Beautiful?
Myths and Facts About People with Disabilities
International Day of Persons with Disabilities, 3 December 2014
Licencing
EU Delegation in Serbia supported the increasing of political participation of persons with disabilities and the impact on policy development in Serbia
National Conference
Accredited Program of Education for Personal Assistants working in five cities in Serbia
CIL Serbia held its Presidency and the Assembly meetings
Jointly forces for economic and political empowerment of persons with disability
With joint forces of political and economic empowerment of persons with disabilities
"Public sector for all citizens"
Combining the strengths: Jointly for political and economic empowerment of persons with disabilities - EIDHR
Combining the strengths: Jointly for political and economic empowerment of persons with disabilities - EIDHR
Combining the strengths: Jointly for political and economic empowerment of persons with disabilities - EIDHR
"Walk of Shame on 5 May" - Save the date
Autism Awareness
SEMINAR – COMMUNICATION AND NEGOTIATING SKILLS
Donation of natural supplements
PROUD OF WHAT WE DO IN PAST 10 YEARS ( and a few more)
Establishing an informal parliamentary group for improving the status, position and quality of life of persons with disabilities ( PWDs Group )
International Day of persons with disability marked in Serbian National Assembly
DISABILITY IS NOT THE QUESTION OF CHOICE – YOUR ATTITUDE IS
Advocacy and local support networks building
Workshop on social enterpreneurship
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ANTI POVERTY NETWORK SERBIA
INTENSIVE EDUCATION
International Day of Persons with Disabilities, 3 December 2013
Voice for equality
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Sustainable support services for PWDs in Serbia
FORCED STERILISATION FINDINGS
Accessibility as a human right
Regional Balkan network of DPOs
Pravilnici
By laws
State of the World's Children
Process of adoption of the Law on Personal Assistance in Slovenia
Every child needs a teacher
Hall of Fame: Gordana Rajkov, CIL Serbia
INNOSERVIS
REGIONAL SEMINAR
Round tables
ENIL’s key definitions on Independent Living
TELE ASISTENCY
The Projected Image: A History of Disability in Film
Breaking boundaries
HUMAN RIGHTS DAY - 10 December 2012
Rio +20
Education for Personal Assistants
PLACE FOR US
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Fair of Civil Society Organisations
PLACE FOR US
Europe 2020 Strategy
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A PLACE FOR US
Joint Committee publishes report on the implementation of the right of disabled people to independent living
The Cost of Disabilities Could Reach 77.2% of Household Income
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Call for Submissions
The World Heritage Convention – 40 Anniversary
LAWSUIT CASES IN THE WORLD
Regional Conference on Independent Living
Enjoying the same rights
The Arts Edition
A PLACE FOR US
World Bank Projects Sluggish Growth for the South East European Economies in 2011 and 2012
International Day of PWDs
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A PLACE FOR US
MIDWAT - phase II
II MODULE - QUALITY STANDARDS IN SERVICE PROVIDING
FREEDOM DRIVE
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FREEDOM DRIVE 2011
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The right for work for PWDs
Development of Nis municipalities



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